-- Hilary's Latest Medical Information --

January 24, 2006

Medical update 01-24-06 Part 1

Late yesterday Connie got a call from Hilary's endocrinologist, Dr. Akright. She was ecstatic because her blood work from a couple weeks ago came back so good. Her Growth Hormone level was 6.9! This is the lowest it's been in over a year, since the morning after her 1st surgery!! Her IGF level was 809, which is ALMOST in the normal range for her age. It had been as high as 1009. Hil comes off her high dose steroids in two days, so she won't have to take the Pepcid anymore. She remains OFF the Insulin for the steroid-induced Diabetes Mellitus and OFF the other meds for the Diabetes Insipidus. Connie took Hilary to see her pediatrician, Dr. Cumming, yesterday, and he feels that everything is coming along nicely.

She gets a 6 week follow-up MRI today, then we'll see Dr. Bogaev next Tuesday to get his impression of that. Also, this Thursday, she sees her regular ophthalmologist, Dr. Hughes, for a regular follow-up exam.

Please continue to remember Hilary and our family, as a whole, in your prayers (and also if you are able or willing, in financial contributions to Hil's medical fund -see Hil's home page-, as all these co-pays add up).

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