Chandra's Journal
March 20, 2006
Canon is two years old! His birthday was Saturday, the 18th. We’re having a big party on the 25th, so we kept it low-key at home. The McIntoshes came over and we sang “Happy Birthday” and gave him a cupcake with a couple of candles to blow out. He did great! He has no interest in answering “How old are you?” and holding up two fingers, but he does like the birthday song and will say “birthday!” and “surprise” while he gives us his surprise face.
The big party Saturday is a catch-all bash. We’re celebrating his birthday and the end of campaigning for the transplant. I feel like it’s important that we thank God all together for answering our prayers for Canon’s health. I have remembered many times this week what we doing one year ago. It was the time we went to Dallas Children’s Hospital for a genetic/metabolic consult and on the way there received the call from Dr. Higgins with the results from his liver biopsy. It was the first time we heard Glycogen Storage Disease Type 4 and the first time we heard that our only option was a transplant. As soon as we arrived back home, I scoured for information on GSD4 and was reading things like “uniformly fatal” and “death in early childhood” and “end-stage liver failure” and “quick degeneration”. Then we celebrated his first birthday at the end of that week. March Madness has a whole different meaning to me now.
Now look at us! Praise God for delivering us through the last year and bringing us to the still waters of today.
Chandra Perkins
The Lord is my shepherd; I shall not want.
He maketh me to lie down in green pastures; he leadeth me beside the still waters.
He restoreth my soul; he leadeth me in the paths of righteousness for his name’s sake.
Yea, though I walk through the valley of the shadow of death,
I will fear no evil, for Thou art with me;
Thy rod and Thy staff they comfort me.
Thou preparest a table before me in the presence of mine enemies;
thou anointest my head with oil; my cup runneth over.
Surely goodness and mercy will follow me all the days of my life,
and I will dwell in the house of the Lord forever.
Psalm 23