Chandra's Journal
November 30, 2005 8:30 pm
Drew was hounding me all day about me needing to get some more sleep to take care of two babies and all. I honestly was not sleepy all day yesterday; I didn’t ever feel like I could take a nap. Adrenaline, I guess. But last night, after several reminders from Drew, I finally left Canon’s room shortly before midnight and went to the waiting room to sleep. (We were on the waiting list for a Ronald McDonald Family Room, but didn’t get it; so we had to move all of our luggage to the waiting room. Mom said we are like the Israelites.) I told him that I would come and trade with him when I woke up, assuming it would be somewhere around 3:00 or so. Well, I went to sleep, then rolled over and looked at my watch and it was 6:00! I jumped up and hustled back here to find Drew hunched over in the chair, sleeping with his head in his hands. I feel terrible! I sent him outside to sleep in the reclining chair. I’ve checked on him a couple of times to make sure he’s sleeping and he looks (and sounds) like he’s getting some good sleep. I just worry about it getting louder and louder in there this morning and him not being able to sleep in there very much longer. I put a sign on top of him that says “I was sitting with Canon all night – Please don’t wake me up. Thank you.” Maybe that will help a little bit.
I haven’t seen the doctors yet this morning, but Maria (his nurse last night) and Jenny (here again for the day) both said he’s doing really good. He’s off of the insulin now, which means he is able to maintain his blood sugar well enough on his own. We have to be off of the dopamine (for blood pressure) and maybe off of the heparin drip before they’ll let him move to the 12th floor (transplant unit).
He looks a lot puffier to me this morning. His cheeks and neck look round and heavy and his hands look like we blew into a surgical glove. Jenny said that it’s because all of the fluid he’s getting is not being pushed through his body very efficiently because he’s not moving around enough. So hopefully in the next couple of days, as he feels more ready to move around, we’ll see the swelling start going down. It makes it harder to be real positive when he doesn’t look like himself.
Chandra