Chandra's Journal

October 6, 2005…

I feel like I have more to write about than ever and less time than ever. But I’m going to get down a couple of things for sure before Canon wakes up this morning. Uh-oh, I spoke too soon! I hear him right now…

First of all, thank God that Creed’s test came back clear!! Of course we will still be keeping a close eye on his development, but Dr. Higgins told us his numbers were “off the charts” (a good thing! The test measured the branching enzyme which Canon has a deficiency in.)

Canon was officially put on the list for liver transplant at around 8:00 last night. His ranking on the list is relatively low (indicating that he’s not medically critical right now); however, Jamie, our transplant coordinator, told us that it looks like he’s the only child in this part of the country that can accept a Type B liver. So if a Type B liver became available, he would essentially be first on the list.

I have so many feelings about this and I hope to have time to write them down maybe later today. I was telling my sister last night what a weird feeling it is to know that it could possibly be a few months before we get the call for the transplant, but having to be prepared to get the call every day from here on out. I feel so nervous all the time now and I have a “to do” list the size of Texas hanging over me. And the only time I have to really do any of it is after Canon goes to bed at 8:30, and then I have to be really quiet. I know, I know… even if everything does get done I’ll probably still feel like I’m not ready.

Well, I hear a “Mama!” down the hall, so I’d better go. Please keep Canon in your prayers as it really could be any day now. Also please pray for me and Drew to hold it together as we try to go about our daily lives with this elephant in the room. God bless you.

“Be still before the Lord and wait patiently for Him."”
Psalm 37:7
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